Influenza Series, Part IV: The tricky part for me--making sense of risk

I started writing this series on influenza because I felt compelled to write about my fears--both the reasonable aspect of them, and the more extreme. My goal for each of these posts is not only to show some of the research I've done, but also to let you into the workings of my mind on this. The photos of clockwork gears that you see throughout are my attempt to represent that process.

I said at the outset of this post series that my worries about H1N1/09 are only amplified because of my own tendencies to crave control and fear illness. A fear of illness, is, of course, an ultimate expression of the need for control over chaos. I recognize all of this about myself. I'm constantly grappling with my judgement about risk, questioning whether my worries are based in logic or not.

In most areas of life, I know that from time to time I downplay real risks, as a way of minimizing my worries, and I know that, conversely, sometimes I overcorrect by being too cautious. Fortunately, what was once more of a constant obsession now only surfaces from time to time; when these worries do surface, they don't stay long.

However, in the spring of 2009, the advent of H1N1 brought my anxieties about health into clear, focused energy once more.

I remember I was in our kitchen, cleaning up the dishes from a Sunday morning pancake breakfast when I saw the first footage coming from Mexico City. The headline said something about influenza, and the reporter was wearing a white face mask. My own transformation was extraordinary. A fear that I had set aside years ago came roaring back like a wind in my head, and I abandoned the dishes to follow the story.

As the numbers of infected and seriously ill people in Mexico were reported, I grew more concerned. The new classification as "swine flu" made me think immediately of 1918. I told a few people about my worries for what may be coming down the pike, feeling like a Cassandra.

Meanwhile the world spun neatly on its axis. Spring blossomed in our yard as quietly and gently as every other year. The sky, to my relief, did not crash down. H1N1 continued in its elegant way to infect people all over the world, enough people, in fact, that the WHO declared it pandemic by early June.

For the most part, I kept sane about it. No, I didn't stop traveling, nor going to public places like theaters. But I did have that nagging feeling that this fall may bring a surprise with it.

Now we are well into the fall, and I feel the pull between the reasonable and the extreme each time I consider the "what to do" about the H1N1 situation.

What I'm doing:
I'm attempting to get the vaccine for us. Ada has had one dose, and needs a followup that may come by January. Esme and I have had no luck in locating one, though I check clinics a few times a week. My husband should get one at work, but--like everyone else's--his vaccinations have been delayed.

I'm also practically swimming in alcohol-based hand cleaners. The girls are pretty well trained on washing up after every trip outside, and before meals, and after visits, and on getting in the car...and so on. Ada tries to be conscientious about that stuff at school, as much as she can. And I have her change her clothes when she comes home from school.

When a whopping 20% of her school was out, we kept Ada home for over a week. After 10 days, it was my hope her first vaccine had at least kick started an immune response against H1N1. A leap of faith for me, but...

I beg off shaking hands, saying "Oh, I've got a cold." Inoffensive, I hope--effective? Who knows? But it make me feel like I'm at least doing something...

What I want to do (but don't):
If I think about it too much, I sort of want to hide in our house. I get nervous about going to a big public gathering, especially one where there are lots of other little kids who sneeze, and wipe, and do all that gross stuff kids do (hey, I know--my kids do it, too.) I want to huddle down in our own little nest and just wait it all out. I want to beg or bribe or get that vaccine right now, and cross my fingers and cast some special spell to keep the flu away from us.

You might have noticed that many sensible and rational people, given the same facts, have a less alarmist reaction about getting this year's flu, or getting sick in general. They trust that whatever happens won't be so bad, that either it's no big deal to start with, or, if it does get to be a problem, that someone will take care of it.

Both of these sensible reactions are based on trust, and as I examine my own fears, I realize I don't feel it. At least not in this capacity. My own concern about the influenza outbreak this year is based on fact, yes--but it is amplified 100 times by my own insecurities.

As I've brooded, I've also tried to see my own process of worrying in an objective way. What is setting me off, I've wondered? I've wondered this especially as I find myself watching a newscast and replying back to the television, retorting something a reporter said about influenza. Why am I acting like this? This is not where I want my energy to go--into stridently arguing with a reporter on tv. Or reading every little thing I can about H1N1. When I step back far enough from myself, I can see that what Kirie is doing is called obsessing.


It's hard to admit that. It's hard to say that what I perceive as a real threat might not be as real to someone else. It makes the ground under me feel shaky. But the fact is there: my obsessions might be based on fact to start with, but they spiral way out of reach of normal at some point. And they tend to be related to my own need to control my environment, to create an illusion of impenetrable safety. On so many levels, I crave predictability, because it solidifies that illusion, like a playback loop whispering: all is well; you are safe. all is well; you are safe.


I've said that this year's H1N1 influenza scenario hits all my panic buttons. Essentially, for me it created two perfect storms. One of those storms is, certainly, the reality that this is a pandemic. The other storm is clearly in my mind--the storm of unpredictability and distrust.

The first issue for me is the unpredictability. The virus is unpredictable, and easily spread, even by people who seem well (because it is contagious even a day before symptoms appear). What appears to be one thing: "just flu" or "don't worry, I don't have it!" might be something else entirely. Of course, the flipsides to these (the ones that slip my mind too often) are a) most people who get sick with flu WILL NOT find themselves at death's door, and b)most people who are walking around town are not in a contagious state of influenza.

The second issue for me is the trust. Basically, I don't trust people in general to take this flu seriously. I really don't trust people to wash their hands, to cough in their sleeves. I don't trust that there will be adequate vaccinations for people who want them *before* the virus peaks. I don't really trust that a cold is just a cold at this point. If I hear someone is coughing, I'm assuming it's flu. I don't trust the media to give a clear portrayal of what flu is, or isn't. I don't trust the government to really stay on top of tracking the changes of the virus, to put funding toward a new method of making the vaccine. I don't trust people to believe me. (Ah, the irony!)

I don't trust, I don't trust. I hear these all strung along in my head as I write this and I feel another feeling echoing it: I feel lonely. That Cassandra-like sensation of being disbelieved is, at its heart, isolating. And overwhelming. Feeling isolated and overwhelmed are cues for me that my worries are not completely related to the influenza pandemic alone. Really, my worries are rooted in my past.


A little headshrinking: My childhood was relatively chaotic--my parents, though they loved me, were somewhat absentee. The day-to-day of my life was far from predictable, people's emotions were volatile--my own, my brother's, my parents'. My own physical environment felt out of my control, and very different from that of my peers. I often felt different and alone, and misunderstood by most people. I could not, if pressed, have imagined what my future would look like. I didn't really trust that I would have a real adulthood--because I couldn't imagine what that could be.


Of course, my adulthood did come to be. Sometime in my early 20s I discovered that I could try to shape my own existence a little. And in my grown-up life, I have predictability in abundance. Calm rules the day--literally, it leads the list of our family rules, which we have written out. Sure, there is the messiness of life with little kids, but it is joyful, and welcomed. Trust is the keystone between my husband and me, between my kids and me. I often catch myself saying to them, "You're doing great. You can do that. I trust you." And I do trust them. I have, as an adult, become faithful in a religious sense, and I trust God, too.

So--here is the contradiction, right: With all this goodness, and all this solid trust and predictability in my life, why worry? Why indeed? Because as much good and beauty as I see, I also get glimpses into the underbelly of life, too, and it unsettles me, deeply. There is room for both, I know. A need for both, in fact. I am practicing holding both the beautiful and the dreadful in my mind at once, and letting it be.

It was not my hope in writing this series to spin up fears, but rather to show how the genesis of my own worries about influenza. I also hoped that writing through my own thought process would help bring some clarity to me about why I have become obsessed. If you have gotten this far into my posts, you must see that, as a threat, influenza sits neatly someplace between something very scary and something to be brushed off as inconsequential. When you consider it, it's best to recognize both extremes as unreasonable, and try, as I am, to find some middle way.

Yes, H1N1 is frightening because it does have a potential to become a terrible flu--one that resembles 1918. Actually, that potential is in every influenza. Given those facts, any objective person would admit that flu shouldn't be taken lightly.

But of course, the potential is there for this to NOT become a deadly flu. And the numbers indicate--in fact, they indicated this in 1918 as well--that the vast majority of people who get influenza recover. Given those facts, any objective person would admit that hiding from the world doesn't actually mitigate the risk--the minimal risk.

The scary potential and the benign potential exist simultaneously, all the time, in all actions. Just writing about that uncertainty makes me catch my breath. I refocus, I breathe, I vow to accept that calmly. I have to push myself to remember these things, but I do. I do push past them and go out into the world, send Ada back to school, take Esme to swimming class, make my art, have playdates, Halloween parties, and see my friends and neighbors. To meet me, you would never guess at the contradictions wrestling each other in my mind, but they are there. And someday, I hope, to accept them without anxiety.

If you are interested in catching up with the rest of the series:

Part I: The Introduction

Part II: A Little Primer on Influenza

Part III: The Anti-definition of Flu

Part III on Influenza: What it is not. An anti-definition

It is the negative definition of flu that concerns me.

At its core, influenza is not a simple disease. From an evolutionary standpoint, it's pretty damn elegant and efficient. And complex.

There is a lot that is understood about influenza and its method of evolving, infecting, and persisting. But a huge part remains unknown. For instance, scientists have discovered the "how" of influenza infection, but they are still working toward understanding what actually happens to the human system when influenza infects it.

This surprises me. When I first learned this, I was amazed that that science hadn't answered this long ago. But there are countless mysteries that remain about the human immune system, its response, and the exact process of many diseases.

A particular mystery of flu is why certain cases of influenza have such horrible systemic complications. These complications, usually involving lungs and circulation, can arise rapidly from flu. These are the most troubling, and the most fatal. There is a point of no return when a flu turns aggressive, and the mystery is often this: it is impossible for a doctor to determine at the beginning whether a specific case will involve these complications or not. This is true even with seasonal flu, but predicting outcomes is even more difficult with a novel influenza.

Before you stop reading and accuse me of being alarmist, let me clarify that in terms of percentages, there is still certainly every reason for to most cases of influenza infection to resolve without any serious complications for the patient. Most people who get flu--seasonal or even pandemic flu--recover without a problem.

The numbers are more complicated than they seem, though: To talk about the scenarios of infectious disease is to talk about variables. The outcome of each case is based a whole set of variables, some of which are unknowable. In a regular season of influenza, some of these variables are better understood. For example, a person with a weaker immune system (think of an elderly or immunocompromised person) will tend to be more at risk for a severe case.

With a novel influenza, the scenario is sufficiently different. There are several new considerations, each which influences the potential for poor outcomes:

First, with a novel influenza, the number of people who get sick is much larger than it is in a regular year with "seasonal" flu. This year, some projections from the CDC estimate that up to 60% of the population in the US will be infected with the virus. This is vastly different from the estimated number of people who get flu in a regular season, which caps at around 20%. More people getting sick means more potential outcomes. That's the first variable.

The second consideration regards who is getting infected. A novel influenza affects entirely new groups of people, people who usually aren't as vulnerable to infection in general. 2009's H1N1 is hitting young adults and healthy children pretty hard. The elderly, who are usually the most vulnerable, are not getting this flu in the same numbers as the younger people in our population. There is some speculation that some older people may have been exposed to some element of the older genetic material of this year's H1N1, and that is making them slightly less likely to get infected. With that said, though, when the elderly do get it, they are quite sick--and they one of the larger groups hospitalized for complications related to flu this year.

A particular variable that concerns me regards the elusive nature of flu as a virus. Consider these points:

• Flu is a common illness, but--surprisingly--it's often an unknown quantity. It's not always easily diagnosed at the bedside, as there are a whole host of "influenza-like" viruses. The symptoms of flu can vary widely from person to person, from something that resembles a cold, to something closer to pneumonia. In particular, this flu is presenting with *no* fever in some people. This, again, makes it trickier to diagnose. Even a test for that's done at a doctor's office is not 100% reliable for determining if the patient has flu.

• There are several types of rapid tests used in clinics, but they all operate in mainly the same way: they detect influenza viral nucleoprotein antigen. To put it simply, the rapid tests search the sample for elements of protein from the influenza protein. What these tests can't do is determine specifically which subtype of flu a patient has. Unfortunately, samples vary, and not everyone who gets these rapid tests gets an accurate result. The CDC advises clinicians that they should not rule out flu based on this test because there is a possibility of a false negative (the test says no flu, but you actually do have it). And again, there are false positives, as well. The tests that do the actual subtyping of flu are the ones done by the CDC and by state health departments, and these are accurate, but expensive, and time consuming.

• Flu is constantly using several mechanisms to adapt itself. Antigenic drift is happening all the time with flu. The flu circulating now will not be the flu that circulates next year, or perhaps even at the end of this flu season, in the spring. That constant change just adds to the uncertainty.

All of this--these variables, this shifting, these spaces in understanding--it all indicates flu is nothing if not more complex than it seems.

Which brings me to the next definition of what influenza is not: It's not "just flu." Though it may be a common ailment, it shouldn't be taken casually. It teeters on that edge of dangerous, even in years of regular old seasonal flu. A novel influenza, such as this year's H1N1, falls off that edge into dangerous territory more often.

Because it is a new virus, with genetic components from avian, swine, and human influenza, this year's H1N1 seems to have triggered a very, very robust immune response in some people, especially healthy young people. Pregnant women also have a huge immune response. Unfortunately, there is a limit to what good that robustness can do. There is some speculation that, at some point, the immune response can actually overwhelm to the body, creating what is called a cytokine storm. Think of it as too much of a good thing. One theory about the cytokine storm is that it creates a sort of "feedback loop" among the antibody response, and that this contributes to the collapse of the respiratory and circulatory system.

There is a lot of work being done on this topic right now, and here is an excellent explanation of what a cytokine storm is, and some great discussion of the topic in general, if you are interested. While the jury is out on the exact mechanism of the cytokine storm and how to mitigate it, it certainly seems to be present in the worst cases of influenza infection. Whether the cytokine storm is a cause of death, or a result of the infection itself--this remains unknown. At this time, cytokine storm remains one of the mysteries about influenza infections, but once understood, this knowledge might make a huge difference in changing the outcome of severe cases.

In 1918, the pandemic was caused by a novel H1N1 influenza. The numbers of people affected with serious or fatal cases was (fortunately for us) much higher than what we are seeing with the H1N1 circulating this year. But there are certainly similarities in the populations who seem to be having the most severe cases. Pregnant women and young adults suffered disproportionate numbers of complicated cases in 1918. And this year, pregnant women and young adults seem particularly vulnerable to influenza infection, and more likely to suffer complications once ill. With all that is unknown about influenza, this much seems clear: this year's novel influenza is more dangerous to more people than a seasonal flu.

And that's why my alarm bell has started ringing...

Some more about that, and the personal reasons this might be affecting me, in the next post.

Part II on Influenza: a little primer to add to the barrage of information you've already gotten

Part II: Yet another primer on influenza

I know everyone is inundated with information about influenza these days. Still, a little about the basics makes sense in the context of my post, so here goes.

I've seen quite a few gaps in the explanation offered on the evening news, and I'm going to make an effort to fill some of those in. In the process, I hope to perhaps debunk a few of the myths that are circulating about what flu is and what it isn't. Bear with me, or skip ahead to part three, if you like. You may, with good reason, question my medical background and authority to write these definitions. No, I am not a doctor. But I am a great researcher, and what I have compiled here is based on that:

What influenza is:

A super-simple way to think of influenza is as a virus with an outer "shell." The shell is studded with two distinct glycoproteins, one which is sort of long and spiky, and one which is sort of squat and mushroom-shaped. Long and spiky is called hemagglutinin, or "H" for short. Shorty mushroom-shape is an enzyme (also a protein) called neuraminidase, or "N."

When a specific influenza is categorized, it is typed according to the proteins present on its shell. As of this writing, there are at least 16 variations of the "H" protein, and nine of the "N" enzyme. When you see "H1N1," you are seeing a name that refers to the types of surface structures on that specific strain of influenza.

Influenza is also categorized into types A, B, and C. These classifications, which dates back to the 1930s, offer a basic means of determining a variety of influenza, but they are quite general. The H1N1 circulating in 2009 is Influenza A.

When a type of flu is called "novel," as this year's H1N1 happens to be, it refers to a "new" strain of flu, essentially a combination of genetic material that hasn't been circulated before in a human population. The bits of genetic code in the novel flu aren't immediately recognized by most human immune systems. And all of this translates to more people becoming infected. People who study pandemics are especially interested in novel influenza.

How it is transmitted:

You know the basics about this: Tiny airborne particles from those already infected will expose you to the virus. You get these from breathing them in (from someone's cough or sneeze--ick!), or from touching a surface on which these little guys have been camping out. (By the way, they can wait patiently for a host for anything from a minute up to 48 hours, depending on the surface and the environment.) Once it gets into you (through your mucus membranes like eyes, mouth, nose), it basically turns you into a flu factory. The mechanism of how flu infects its hosts and replicates itself (humans and animals) is fascinating and frighteningly efficient. For a great example of a video that depicts it, check out this piece by Harvard's Medical school.

How it changes:

Influenza is a constant invader to humans because it's highly adaptive. First, the proteins on the surface change pretty frequently. Each change makes a slightly new virus, one that is newly unrecognizable to the human immune system. This is why the seasonal flu from last year is always different from the seasonal flu the year before, and so on. In an attempt to help create a wide range of antibodies for those vaccinated, each year's vaccine actually includes bits from several strains circulating the year before.

Influenza has yet another trick: when it replicates its RNA, the virus can exchange bits of genetic material with other influenza variants, even variants that infect primarily animals. This is why some strains of influenza have genetic material from avian or swine flu, or both. This year's version of H1N1 actually has all three.

What actually happens when a person gets infected with seasonal flu:

You know how this one goes, too. The symptoms of flu are generally related to the human immune system trying to expel the virus. Generally, after a 1-4 day incubation period, influenza has an extremely quick onset, that hits a person like a ton of bricks. Common symptoms are the headache, body aches, fever, chills, shaking, cough, sore throat, and weakness. If it's flu, you are flat-out sick in bed for at least 2 or 3 days, and more likely 5-7. Basically, it sucks. It's not uncommon for a cough to hang around after flu for up to 5 weeks, and post viral weakness can linger, too, for several weeks, especially in adults.

And for novel H1N1? What happens?

Well, keep in mind first that H1N1 is an influenza. The symptoms are similar. But because it is an influenza, it also has a range of symptoms and severity. I think it's worth noting that the Centers for Disease Control (CDC) has stated that a fever is not always present with this flu. The cough seems to be universal, as do the aches, fatigue, and sore throat. The incubation time is similar to a seasonal flu (1-4 days), and the recovery time is similar as well, but a person is contagious for at least one day after the symptoms disappear and--more problematic--a full day before the symptoms begin. Additionally, there is some speculation that the virus continues to be contagious several days after symptoms have abated, especially in children. The symptoms that can linger for weeks include a generalized weakness and a cough.

That is the very basic outline of what flu is. But my concern about influenza, and this particular strain, has more to do with what flu is not, than what it is. And that is the subject of Part III.

Part I: Intro to why I started thinking about influenza

Part IV: The Tricky Part for Me: Making Sense of Risk

In-flu-enza: A post in several parts

A multi-part post in which I alternately stand on my soapbox and step down to muse a bit.

There was a little bird

Her name was Enza.

They opened up the window,

and in-flew-Enza.

--American jump-roping song popular in 1918-1919

PART I: Flu on my mind.

I've been debating for months whether to add my voice to the cacophonous bluster about flu that fills our media these days. I'm writing about it here because the whole pandemic influenza thing is not a new worry for me. I've been wary of it for many years, probably because it hits all my sorespots of worry and illness and control. I'll get more into that in the third part of this post series. For now, hang on for a bit while I hop up onto my lecture/soapbox and explain a few of my thoughts on it.

If you know me, you might well know that I have been, at times in my life, a fantastic worrier. But I'm also pretty damn willful, and I've been willing myself to let go of that worrying tendency. Over the past five years, I'd say it's actually starting to work.

Sometime in my anxiety-ridden twenties, I discovered completely by accident that I loved reading about history. And it brought an added benefit: visiting and studying the past was soothing, comforting. I am nostalgic at heart, and a sucker for a story--it's amazing it took me until my twenties to cultivate an interest in history. As I read more, I found myself not only drawn into the stories, but also calmed by the greater fact of history: the fact that life goes on.

Of course, looking to the past presents other problems. History is unconcerned with neat endings or safe outcomes. The past is, in its essence, a place peopled with figures who, right or wrong, with dignity or with disgrace, lived--and died. To embrace history is to make the admission that we, too, recede into the past; our lives will become simply remnants of stories, bits of ephemera that fade away.

Did I say earlier that I had willed myself away from worrying? That history soothes? Because that last paragraph is nothing if not melancholy. But as I consider history, I find a strange comfort in the juxtaposition it presents. Thinking about the past offers that rare chance to hold in the mind, simultaneously, the ideas of both mortality and hope.

The events of the 1918 influenza pandemic distilled these feelings for me, when I stumbled onto it. As I learned more about it, I had the feeling of discovery, as though I had unearthed some weird secret of the recent past. Of course, it's getting its fair share of play right now, but for decades, it was a largely forgotten story.

My interest in what happened in 1918 fostered a curiosity about influenza in general. And what I hope to do with this next posts is to share some of my thoughts and attempt to make some sense out of pandemic flu since I started thinking about it years ago.

Pandemics are nothing new. And--this part is important--pandemic does not necessarily mean deadly. Pandemic just means a disease significantly "spread worldwide." Simply because a virus has a high infection doesn't always necessarily mean that it's deadly for many people.

But influenza is a tricky virus, and it *can* be deadly. It's that unknown element that makes it frightening.

The past 900 years of European history is peppered with accounts of entire countries or continents being besieged with deadly respiratory disease. We would certainly consider these pandemics today. Many of these aren't well documented, but the descriptions that do exist bear a striking resemblance to what we know as novel influenza. Of course, the most well-documented pandemic in history is the one of 1918, which killed upwards of 50 million people worldwide. As a comparison point, consider this: 675,000 Americans died as a result of the 1918 influenza, more than twice the number of Americans who died fighting during World War I.

When I first encountered them, these figures stunned me. I mean, come on. Flu. Everyone gets flu once in a while, right? A sore throat, a fever, a few days of rest---and it's gone. Flu is no big deal, right? I was incredulous that the flu actually killed so many otherwise young and healthy people. My initial, childish reaction to these accounts came from fear and ignorance: I scoffed at the limits of medicine at the time. What a long way we've come since then, I reassured myself. Nothing like that could happen today.

Still, my curiosity had been piqued, and I read anything I could about 1918. And then anything I could about influenza in general.

The picture that started to form in my mind was less ill-informed, and more frightening. The pandemic of 1918 was a perfect storm of circumstance, and it was not unlike what is happening now with the 2009 H1N1.

I want to be clear: I'm not implying that history is repeating itself. The H1N1 virus of 2009, while similar in makeup to the virus of 1918 , is not the same virus, and the scenario is obviously different. I do not believe that the strain of influenza (Novel H1N1/2009) circulating at this point in time will kill 6% of our population. I do not believe we are seeing the beginnings of story to rival The Stand, or the bible (how strange to see those in a sentence together). Still, some things happening now with the current strain of H1N1 give me pause. And my alarm bell, though admittedly prone to go off, has started ringing.

Part II: A Primer on Influenza

Part III: An Anti-definition of Influenza

And to skip to the reason on why I, in particular, am concerned:

Part IV: The Tricky Part for Me: Making Sense of Risk

Halloween Redux 2009

It's funny how I can spend over 4 weeks sewing a costume that gets worn for fewer than two hours. And stranger still--I still think it's worth it. For the details of the whole sewing process, see here. Or here, for the planning part.

Ada loved her costume! She swished and flowed and floated around the house with a few friends who came for a Halloween lunch of macaBoni and cheese, and slimeade.

After a couple hours of "swimming" around with the tomato, the kitten, and Esme (who wouldn't dress up for lunch), Ada and her friends decided to become kids again, and we put the costumes away for the afternoon.

Esme enjoyed dressing up, too. Though from the photo below, it's hard to guess! She was itching to just get out and march through the neighborhood. Esme's real love was the candy, I have to admit. We are in the midst of bargaining now to limit how much she eats, and I have designated tomorrow as the official toss-out-the-candy day. (I will probably stash away a couple of little chocolates for them as treats, but don't tell!)

Aside from their playdate with friends, the best part of Halloween was handing out the candy. They loved to see all the other kids and Esme, to my delight, even gave away some of the candy she'd received. All in all, it was a frightfully good Halloween.

Mermaid costume endnotes

Mermaid, mermaid, blah, blah blah. Anyone who's talked to me in the past month has had their fill of hearing about sewing this costume. Still endnotes are productive for future projects, and for anyone interested in sewing something similar--maybe I can save you the time of reinventing the wheel.

So, here are a some notes on the costume making, for those of you who are interested in such things...

A few lessons learned:

• Ada's scaly blue tail was a perfect fit, but because I sewed a blue sequin border where the blue tail meets the fin, we lost some of the stretchiness of the blue scaly fabric there. As a result, Ada had a bit of a challenge walking.

• I made the cape with the idea that it was going to be cold, and, for the first time in decades, it wasn't. The evening temperature was around 68 degrees! Fortunately, the cape is something that will work for magician play, or fancy dress, and it's reversible. I'm hoping she gets more use out of it.

• As I was attaching the bodice to the scaly tail, I realized they didn't match: the bodice was too wide, and the tail was too narrow. After some reading, I realized I could probably make a few darts in the bodice to decrease the waistline. I had no idea how to do this, so--more reading. After some fiddling around with samples, and lots of ripped stitches, I got four darts into the waist, and--big grin here!--it worked.

• The biggest time-eater was sewing a lot of this by hand, from attaching all the sequin tape to putting the layers of the bodice and tail together. My hand sewing is atrocious, but maybe it got a little better with the practice...one can only hope.

• The fin was tough to fit onto the scaly tail--it flattened out at first, so I sewed a little triangular piece to each side to make it more circular (essentially I made two gusset-like pieces, I think), and then suddenly it had dimension.

• I did decorate an old pair of shoes for the costume, too. I used pale pink sequined tape, glitter, and some little shells. But because I glued all of this onto the shoe--they were too stiff! Ada shuffled around a bit and admired them, and then we decided to just keep them as a decoration.

My favorite parts of the costume:

I really love the entire cape. It's hangs well because it's got some weight to it. I used a heavier silk lining for the dark blue, and then I used batting between the layers to add warmth and heft. And I was pleased with how the ruffled collar came out. It was my first stabilized collar, and yay! It worked. My favorite part of the cape, though, are the plackets on the cape armholes. I taught myself how to make these, so I don't know if they are technically right, but I think they look really nice, and they make the cape look that much more elegant on Ada.

I lined the entire costume with a green stretch satin, and I loved the color so much I wanted to pull it through other elements. I made the piping for the arms and neckline with some of the sparkle organza wrapped around the green satin. I really liked this, and I'm going to find a way to use this fabric again.

I also used the satin to make a little tape to ruffle out around the edge of the bodice. It's tiny next to the piped border, but I think it's a sweet little detail.

The tail is really fun, and was neat to watch come together. I used four colors of an sparkly organza called "fairy dust." To make the tail, I used an interfacing base, and then added layers of different colors. Then, for the flowing part of the tail, I used unfaced bits of organza just cut in wispy shapes. We lost a few of these on the trek through the neighborhood, but that's okay--it still looked fishy!

If you are sewing your own mermaid costume, I would be happy to offer any advice--drop me an email!

Mermaid costume in process

If you've spoken to me in the past two or three weeks, you know my studio is awash in mermaid-like fabric.

Here are some peeks at what is happening at the sewing machine:

This is a partial view of the tailpiece. Stretchy blue, and a neat compromise between lycra and vinyl, it's perforated with little half moon shapes, which seem to perfectly suggest scales.

I attached the tail to the bodice with a little piped border. In the process, I learned how to make darts to pull in the bodice fabric. Everything has a little stretch, so the end result should be snug on Ada, but only to the point of fitting well.

This sparkled organza is flowing and crisp at the same time, and it makes for a perfect tailfin. I'm putting together pieces of blue, green, white, and pink, and layering them. The base piece has interfacing sew in as a base so it is pretty stiff, but the other pieces are loose. My goal is to attach them to the tail in a a V-shape, then add a border along the top to neaten the edge. This element has taken longer than I anticipated!

The part of the costume Ada loves best is the sequined bodice. I am sewing sequined trim tape to the top in strips. Talk about taking longer than I anticipated! I have been up late many nights with a needle and thread as I catch individual sequins and anchor them to the satin. To save some time, (and to be sensible about who is wearing this thing), I decided only to sequin the front of the bodice. The back will remain plain satin, which will be much easier for Ada to sit in.

There are other details I'm working on: shoes, a shell necklace, and a cape (it's cold on Halloween night!). I'm hoping I finish them.

And all of this because....well, because it's fun to try to learn to do new things, and Ada's face when she sees each step completed is a fantastic motivator. She appreciates all the things I make, and she is learning how to do these sorts of things herself, too.

I'll post the final results this weekend!